Early symptoms of NP-C are frequent falls, balance problems, loss of vertical eye movements, slurred speech, and learning difficulties. As the disease progresses, seizures begin, children lose their motor skills, eyesight and hearing, as well as the inability to swallow, and ultimately - death.

This life-robbing disease is not only painful for these children, but also their parents who experience a tremendous heartbreak as they watch their children slowly decline both physically and mentally. No child should have to suffer from such pain. Although children worldwide are afflicted, research has been extremely limited primarily because of insufficient funding due to a smaller population of children affected and lack of public knowledge.  Currently, there is no cure or treatment for NP-C.  

YOU CAN HELP these children who have been stricken with this cruel & deadly disorder by supporting accelerated research to find a cure for NP-C.